Tuesday, July 26, 2016
Wednesday, May 11, 2016
Beginning of Summer Holiday/Myrtle Beach
What's up my loyal followers. I've been having a good time lately. I've done well in school, had a good holiday, and got some good news about my father's estate. Things are going pretty well for me at the moment.
I got an A on my autism paper and passed both of my classes with A's so that that's good. I'm signed up for a summer class, which I'm not too thrilled about but I suppose it'll give me something to do. It doesn't start till the 13th of June so I have another month before I have to go back.
I got some good news from my sister regarding my father's estate. We've been kinda freaking out about what we were going to do with the oh so lovely house he left us but the city is going to take it back for us. It will take some extra time, I was told an additional six to nine months, but at least we don't have to worry about it anymore. Plus without having to take care of the house there should be some money left over for us.
I got back on Sunday from a week in Myrtle Beach. I went down there with my parents and my sister and her husband and son. It was a fun week. We stayed at the Oceans 22 resort which was pretty cool. We had an awesome suite with a great view of the city and the ocean. Hung out at the beach, which was too cold to go swimming in but I went swimming in the pool. My mother and I went to the Hopsewee plantation. I thought it was really interesting but my mother didn't really like it all that much, she's not into history like I am though so whatever. We walked down and took a ride on the SkyWheel which I pressured my parents into doing with me, though I don't know why as I'm terrified of heights and it really freaked me out. It was a great view though. We were in a pretty central place so we walked pretty much everywhere. I did sprain my ankle the second day almost immediately at the beginning of a mile long walk to the boardwalk, it was of course right in front of my parents and this random woman who proceeded to laugh at me, so there was that to deal with all week. It's still pretty sore. We did a lot of shopping. The boardwalk has this shop called the Gay Dolphin which had the most random collection of stuff. We went to Ripley's Aquarium and I got to pet a stingray. They're just a rubbery and slimy as I remember; I got to pet them before when I went to the Cayman Islands. We went and seen the Pirates Voyage show dinner thing which was totally awesome, and if you get the change I would definitely recommend it. We went to Broadway at the Beach which was cool. There's all kinds of fun shops there. I found some new fidgety toys, a box (I collect wooden boxes), and some other little stuff like magnets and buttons. There were several retro/pop culture shops that were really cool. Mostly I bought postcards, my big purchase was a myrtle beach jacket.
I also bought some hermit crabs. And spent most of my money on putting together a crabitat. It cost me over a hundred dollars and I still have stuff left to buy. I didn't realize hermit crabs were so expensive and if I'd known how hard they are to take care of I probably wouldn't have bought them. My sister and I had some when she was living here but I don't remember having all this stuff. Please research your pets before you buy them. They are pretty interesting though. And they're nocturnal so I get to watch them crawl all over when I'm up watching movies at 3am.
I got an A on my autism paper and passed both of my classes with A's so that that's good. I'm signed up for a summer class, which I'm not too thrilled about but I suppose it'll give me something to do. It doesn't start till the 13th of June so I have another month before I have to go back.
I got some good news from my sister regarding my father's estate. We've been kinda freaking out about what we were going to do with the oh so lovely house he left us but the city is going to take it back for us. It will take some extra time, I was told an additional six to nine months, but at least we don't have to worry about it anymore. Plus without having to take care of the house there should be some money left over for us.
I got back on Sunday from a week in Myrtle Beach. I went down there with my parents and my sister and her husband and son. It was a fun week. We stayed at the Oceans 22 resort which was pretty cool. We had an awesome suite with a great view of the city and the ocean. Hung out at the beach, which was too cold to go swimming in but I went swimming in the pool. My mother and I went to the Hopsewee plantation. I thought it was really interesting but my mother didn't really like it all that much, she's not into history like I am though so whatever. We walked down and took a ride on the SkyWheel which I pressured my parents into doing with me, though I don't know why as I'm terrified of heights and it really freaked me out. It was a great view though. We were in a pretty central place so we walked pretty much everywhere. I did sprain my ankle the second day almost immediately at the beginning of a mile long walk to the boardwalk, it was of course right in front of my parents and this random woman who proceeded to laugh at me, so there was that to deal with all week. It's still pretty sore. We did a lot of shopping. The boardwalk has this shop called the Gay Dolphin which had the most random collection of stuff. We went to Ripley's Aquarium and I got to pet a stingray. They're just a rubbery and slimy as I remember; I got to pet them before when I went to the Cayman Islands. We went and seen the Pirates Voyage show dinner thing which was totally awesome, and if you get the change I would definitely recommend it. We went to Broadway at the Beach which was cool. There's all kinds of fun shops there. I found some new fidgety toys, a box (I collect wooden boxes), and some other little stuff like magnets and buttons. There were several retro/pop culture shops that were really cool. Mostly I bought postcards, my big purchase was a myrtle beach jacket.
I also bought some hermit crabs. And spent most of my money on putting together a crabitat. It cost me over a hundred dollars and I still have stuff left to buy. I didn't realize hermit crabs were so expensive and if I'd known how hard they are to take care of I probably wouldn't have bought them. My sister and I had some when she was living here but I don't remember having all this stuff. Please research your pets before you buy them. They are pretty interesting though. And they're nocturnal so I get to watch them crawl all over when I'm up watching movies at 3am.
Saturday, April 30, 2016
Innocent
Yet another poem from the previously mentioned contest.
Bad
things happen
To
good people
To
children
Who have never
Who have never
Done
anything wrong
Who
don’t deserve
To
have their life
Their
childhood
Stolen
from them
But
it happens
It
happens everyday
And
bad people
Continue
happily
On
with their life
Uncaring
of the
Damage
and destructing
They
have just
Inflicted
On
an innocent
Saturday, April 23, 2016
Thief
Another poem I wrote for the previously mentioned poetry contest.
He
ruined me
Because
of him
I
can’t touch people
Can’t
trust people
Because
of him
I
am tainted
I
feel dirty
Like
I’ll never be clean
And
it’s his fault
I
hate him
I
hate him for what
He
did to me
He
stole my childhood
Sunday, April 17, 2016
Conversation with Voloyda 28
Actually,
after I looked through the blog, it seems I never posted the one stating
Voloyda was mentally ill. I just found
it, typed up but never posted. The lost
post, all the way back from September of ‘14.
I meant to post it a few days after Conversation with Voloyda 27 but I
must have forgot. Oops, my bad. I give you the long, long overdue post of
Conversation with Voloyda 28.
V:
You know how at first I said Connery was his son that died and you said if he
lost a child that was very sad and then I said that Connery wasn’t his son and
that he wasn’t dead?
O:
Yes.
V:
Well it turns out that Connery was his son and while he isn’t dead, David did
‘lose’ him in a sense. Apparently
Connery is his son from his second wife and David abandoned him as well. Just like he did to his first wife and
children. He seems to make a habit of
it. A man that doesn’t stand by his
children is no man at all; he’s a coward and a blackguard and does not deserve
respect.
O:
Really? If that’s true it’s fucked up.
V:
I’m telling you there’s something really not right about that man.
O:
There’s something really not right about you as well.
V:
Say what you will about me but at least I take care of my
responsibilities. Family is more
important than anything.
O:
Says the man who at the age of 20 was so desperate for a child he took it upon
himself to hide my birth control pills and when I had them replaced, swapped
them with a placebo.
V:
Er… I don’t really have a defense for that one.
It was completely crazy. I never
really apologized for it either so I’m sorry.
O:
I’m sorry but in this case apologizing doesn’t cut it. What you did was seriously fucked up and so
beyond the realm of sane behavior I don’t even have a response for it. I’m just happy I didn’t wind up pregnant.
Sabotaging
my birth control. At first I thought it
was me and that I was just really absentminded and kept losing them. And then I found out it was him. That was the turning point in our
relationship. It was I think the first
time I really noticed there was something really, seriously wrong with
him. There were smaller things before
that, but the birth control was the big one that made me go ‘what the hell?’ That is just not something a sane person does
and it was something I couldn’t overlook.
We broke up not long after that.
However,
I will say, his behavior been much more stable ever since he was placed on
medications for his illness (which I will not disclose because it is not my
business to do so and it doesn’t really pertain to the topic of the post.) If he says it’s okay I may tell you but at
this point it isn’t relevant.
As
for David’s children, that sucks. But,
and I speak as someone whose parents are no longer together: if the
relationship is not working and they feel as if it would be better to separate,
they should do so. I would rather my
parents be happy living separately than stay together and be miserable.
Friday, April 15, 2016
Treatments for Autism: Therapy or Torture
Here's my final paper for my Comp II class. An 8 page (though mine ended up being 9 3/4 which is good because 10 was the max it could be)
argumentative synthesis report. I
actually had a fun time writing it. As
you know I am autistic and autism is something I'm passionate about. Plus people don't generally seem to know a
lot about autism and the kinds of things we have to deal with so it's worth
educating them a bit. As I wasn't diagnosed at the time, the therapies I went though were not to 'cure me of my autism' but rather my ADHD, ODD, OCD, and social phobias and anxieties. I've not had it
graded yet but I'll let you know what I get.
Here it is:
Treatments for Autism: Therapy or Torture
Autism
is a neurodevelopmental disability characterized by difficulties in social
situations, verbal and non-verbal communication and repetitious behaviors. By current accounts Autism Spectrum
Disorders, commonly referred to as ASD or autism, affect one in 68 children (“Data
& Statistics”). Questions have been
raised as to whether the rates of autism are rising or if it is due to the changes
in diagnostic criteria that have resulted in additional people receiving a
diagnosis. It is not known for certain
what causes autism, but doctors are of the opinion that it is caused by a
combination of environmental and genetic factors that occur during
pregnancy. Though there is no approved cure
for autism, many therapies boast that they can reduce or remove symptoms so as
to make the autistic person appear neurologically typical. In an effort to normalize the autistic person,
these therapies employ various methods which are generally physically or
mentally harmful. Most autistic people
are of the opinion that any therapy with the goal of removing autistic type
behaviors in order to make an autistic person pass as neurotypical is not
therapy but abuse. Quite a few of the
most common therapies employed in the treatment of people with autism are not
therapies; they are torture.
One
of the most common recommended therapies for autism is Applied Behavior Analysis
(ABA), also referred to as the Lovaas method after Dr. Ivar Lovaas who created
it, in which positive and negative reinforcement techniques are employed so as
to bring about a change in behavior. Generally,
the behaviors that ABA seeks to change are those that make the autistic person
comfortable. Sparrow Rose, autistic
advocate and author of the blog Unstrange Mind, says the following about ABA
therapy:
ABA’s core belief is that forty hours per week of therapy geared
toward making a child externally appear as “normal” as possible
will “fix the brokenness” inside that made the child behave that
way. ABA believes in an extreme form of “fake it until you make
it,” and because it is behaviorism at its most pure — that is, a
psychological science that treats internal processes as irrelevant
to
function (Lovaas said, ‘you have to put out the fire first before
you worry how it started’) — it treats behavior as meaningless
and unwanted actions rather than as communication.
Ignoring the fact that autistic people are not
broken and that no amount of therapy will cure them of being autistic, this
therapy is supposed to occur 40 hours a week for children as young as two years
old. What type of child, autistic or
neurotypical, has the fortitude to not only maintain their current functioning,
but also to learn and improve while forced into basically a full time job? These children are forced into a state of
perpetual exhaustion.
The
goal of Applied Behavior Analysis is to get the autistic person to conform to
the neurotypical standard. Amy
Sequenzia, non-verbal autistic advocate, states that the ABA she went through
was disrespectful to her autonomy. She
was not allowed to say no or to make her own choices (“Non-speaking Autistic
Speaking”). In a separate article,
Sequenzia goes on to say that ABA therapy consists of the therapist, regardless
of the autistic person’s wants or needs, commanding the autistic person to perform
a task, to give a response, and to suppress their natural movements (“Autism
Women’s Network”). The autistic person
sits through forty hours a week of being told to and often forced to make
eye-contact, to point to the right item, to say what the therapist wants to
hear all while being told that they are not good enough, told that normal
people can do this without issue, told that if they cannot or will not do this
they are useless. The ABA therapist then
takes this beaten down and exhausted autistic person and says: ‘See look, it does
work. This person no longer exhibits x
autistic behavior.’ Part of ABA’s ‘success’
is not due to the breakdown of autistic behaviors, but the fact that the autistic
person is so exhausted they do not have the energy to do them. Applied Behavior Analysis does not teach
skills, it teaches compliance and that autistic people do not have the right to
say no. ABA teaches people with autism to
ignore their natural movements and behaviors and to do things that they find
unnatural or painful in an effort to appear normal.
Similar
to ABA is Systematic Desensitization Therapy which differs from Applied
Behavior Analysis in that while ABA typically focuses on building up ‘positive’
behaviors, the focus of systematic desensitization is to eliminate the ‘negative’
ones. People with fears or sensitivities
to things tend to avoid them; the purpose of desensitization therapy is for the
individual to overcome their need to avoid things by gradual exposure to the
feared item with the end goal of complete ease around it (“Desensitization”). The methods used are repeated exposure to
whatever is causing the negative reaction.
Autistic people generally suffer from an unusual amount of sensory
sensitivities. These sensitivities can
be anything from being blinded and feeling intense pain from bright or
fluorescent lighting, to the skin feeling as if it is being ripped off when
touching certain textures, to loud or unexpected noises resulting in a stabbing
sensation in the ear.
In
order to cure the autistic person of their ‘unnatural’ reactions to these
situations, the therapist would purposely and repeatedly expose them to the
thing they are sensitive to. I have been
through this type of therapy. The above
listed sensitivities are my own; I have problems with lights, textures, and
noises. In an effort to cure me of my
‘abnormal’ reactions, the therapist would randomly shine a blinding light into
my eyes, or blast an air horn. I
remember screaming and crying while my hands were forced into unpleasant and
painful textures. I remember hiding under
the table crying after having honey smeared on me because ‘being sticky is part
of everyday life and it’s something you have to get used to.’ Being sticky is most definitely not a part of
everyday life; normal people, like they were attempting to make me, do not walk
around all day being sticky. I went
through this painful and unhelpful ‘therapy’ and it did nothing; if anything,
it made me worse. Fifteen years later
and I still suffer with lights and textures and noises.
Popular
among people who believe autism stems from a physical or environmental cause,
some parents are dosing their autistic children with Miracle Mineral Solution, MMS,
also known as Chlorine Dioxide. For the
layperson, chlorine dioxide is more commonly recognized as bleach; yes, that
bleach, the kind that is used to clean clothes and sanitize kitchens and
bathrooms. Dr. Andreas Kalcker, biophysicist
and chlorine dioxide researcher, is of the opinion that not only is autism
treatable, it is curable with Miracle Mineral Solution. Kalcker claims that in the past three years
the Miracle Mineral Solution treatment, which entails having the autistic
person consume anywhere from one to 60 drops of MMS per day, has cured 133
children of autism (Kalcker). This statement
of 133 cured autistic people has not been verified by any reliable source, nor
is a supposed success rate of 133 out of the tens of thousands of people who have
been administered this ‘cure’ a miracle.
The
theory behind MMS as a treatment for autism stems from the fact that chlorine
dioxide can kill parasites, bacteria, and viruses, which some people believe to
be the cause of autism spectrum disorders.
Miracle Mineral Solution does kill off those things, but it wreaks havoc
on the body in the process. MMS is a
dangerous poison; it would be unwise to think any good could come from
ingesting it. Even if Miracle Mineral Solution
did cure autism, doctors say that it is not worth the risk. The FDA warns people against its usage
stating: “The product, when used as directed, produces an industrial bleach
that can cause serious harm to health. … High oral doses of this bleach, such
as those recommended in the labeling, can cause nausea, vomiting, diarrhea, and
symptoms of severe dehydration” (“Miracle Mineral Solution”). MMS can also cause damage to red blood cells,
which can lead to the development of anemia and in severe cases, respiratory
failure. Well-intended parents and
doctors are poisoning autistic people with Miracle Mineral Solution. Autistic people are suffering, forced by
their parents or doctors into taking this dangerous toxin.
Chelation, like Miracle Mineral Solution, is
another dangerous and unproven treatment for autism. Proponents of this method believe that autism
is caused by a surplus of heavy metals in the blood and through chelation those
metals can be removed. Chelation is
performed by injecting the autistic person with the chelating agent, ethylene
diamine tetra-acetic acid, EDTA, which binds with the heavy metals in the blood
so that they can be easily passed in the urine.
Though not generally dangerous when used as intended for heavy metal
poisoning, when chelation is used as a treatment for autism there can be severe
and potentially life-threatening side effects including fever, headache,
nausea, vomiting, heart failure, abnormally low calcium levels, permanent
kidney damage and bone marrow depression (“Chelation Therapy”). Chelation therapy has led to the death of at
least one child; five-year-old Tariq Nadama died from cardiac arrest elicited
by low calcium levels shortly after receiving the treatment.
Even
with the risks, many parents swear by chelation therapy, stating that it has
recovered or cured their child’s autism.
Special education advocate and mother of an autistic son, Lisa Brown, claims
that within three months of starting on chelation therapy her son Ben exhibited
“lower outbursts, less aggressiveness, better concentration, much more
language, reading skills, and personal control” (“Autism Mom Shares”). Steven Novella, neurologist and editor of “Science-Based
Medicine,” believes that chelation does nothing to cure autism and giving it to
children is highly unethical. Novella goes
on to state:
Children with developmental and neurological disorders will often
improve as they age. This background maturing can easily be
mistaken for improvement in response to a treatment. There is also
the numerous psychological effects that highly motivate parents to
believe their children are being helped, even when they aren’t (such
as
confirmation bias and expense justification). The simple fact is
that history has shown that anecdotal evidence is not reliable.
There has been no dependable evidence that chelation
therapy is successful at curing autism spectrum disorders, yet autistic people
are being forced to go through this life-threatening treatment.
Some
people believe that autism spectrum disorders can be cured or reduced by
physical means, which have resulted in the following therapy methods. Banned in the United States but popular in
France is a bizarre form of hydrotherapy known as packing which involves
tightly wrapping autistic people in cold, wet blankets. During a packing session, autistic people are
stripped down to either their undergarments or completely naked and wrapped on
all but their head as tightly as possible in wet towels and sheets that have
been soaked in freezing water. The ideal
temperature for the towels and sheets used in this treatment is a mere 50
degrees Fahrenheit. For reference, water
below 70 degrees Fahrenheit can lead to hypothermia in as little as 15 minutes
(“The Facts on Hypothermia”). The autistic
person is tightly wrapped in these freezing sheets, covered with an additional
dry blanket, and kept like that for 60 minutes during which time they are
encouraged to talk to a psychologist. This
therapy is administered from once a week to every day depending on the severity
of the person’s autism. Doctors in
support of this practice claim that it, “reinforces childrens’ consciousness of
their bodily limits” (“Packing Therapy and Autism”). Many autistic people have trouble recognizing
their bodily limits. Proprioception is
the sense that tells where the body and limbs are in space and in relation to
each other, which for reasons that have yet to be determined, are lacking in
people with autism spectrum disorders.
This lack of proprioception input is the reason many autistic people
have erratic movements and seem unduly clumsy.
Being tightly wrapped provides a strong sense of where the body is,
which does reinforce the perception of the persons’ bodily limits.
If it were not for the cold temperature and lack of
control on the part of the autistic person, this could actually be a useful
therapy. Many autistic people crave the
sort of deep pressure that being tightly wrapped provides, which speaks to the
success of deep pressure providing items such as weighted blankets, body socks,
and Dr. Temple Grandin’s hug machine.
However, the difference is that autistic people willingly choose to use
those things; no one would choose to be forcibly bound in towels cold enough to
induce hypothermia. Oliver Bousquet,
former psychiatric nurse and father to a non-verbal autistic boy, said that
while his son enjoys deep pressure, “It is very difficult to imagine my son
wrapped in sheets, without being able to make a movement. He would be
distressed but he would not be able to express his distress” (qtd. in Spinney). Most doctors are of the opinion that packing
is an unethical and demeaning treatment that violates the rights of the people
subjected to it.
In the 1960’s, prior to Dr. Lovass’ development of
ABA therapy in the treatment of autistic people, one of the methods Lovaas
employed was aversion therapy, sometimes referred to as aversive therapy. One of the most controversial methods in the
treatment of autism, aversion therapy involves using electric shocks as a way
of curing unwanted behaviors. In 1965,
an article titled "Screams, Slaps & Love A Surprising, Shocking
Treatment Helps Far-gone Mental Cripples" from Life Magazine
describes how aversion therapy was used in the treatment of a nine-year-old
autistic girl called Pamela who kept showing autistic behaviors during reading
lessons.
To give her something to be anxious about she was taken to the
shock room, where the floor is laced with metallic strips. Two
electrodes were put on her bare back, and her shoes removed.
When she resumed her habit of staring at her hand, Lovaas sent
a
mild jolt of current through the floor into her bare feet. It was
harmless but uncomfortable. With instinctive cunning, Pamela
sought to mollify Lovaas with hugs. But he insisted she go on
with her reading lesson. She read
for a while, then lapsed into
a
screaming fit. Lovaas; yelling ‘No!’, turned on the current.
Pamela jumped – learned a new respect for ‘No.’
In the 50 years that have occurred since this article was published, one would think some new, less abusive methods would have been developed in the treatment of autism, and methods such as shock therapy would no longer be employed. Unfortunately, that is not the case; aversion therapy is still used as a treatment for autism.
The Judge Rotenberg Center (JRC), which treats people with severe mental illness and developmental disorders, is one of the only locations in the country where aversion therapy is still regularly performed. JRC states that aversion therapy is the only non-pharmaceutical cure for bad and destructive behaviors in autistic people. Glenda Crooks, JRC’s executive director, says that while the shocks are painful they do not cause any injuries; however, former employee Greg Miller argues against that, stating JRC patients regularly received severe burns from the treatment. Aversion devices today are now easily contained in a backpack like apparatus referred to as a Graduated Electronic Decelerator (GED). The GED device, which some people are forced to wear for up to 24 hours a day, is attached to electrodes placed against the person’s skin and controlled by a remote control carried by a doctor, nurse or staff member. Jennifer Msumba, an autistic woman, who received aversion therapy for things like head-banging and hand movements while at the Judge Rotenberg Center asserts that, "I felt like I was being punished for being born. Because I was disabled I was being punished” (qtd. in Werner). Msumba further stated, "It's so scary. I would ask God to make my heart stop because I didn't want to live when that was happening to me. I just wanted to die and make it stop." This sort of treatment is completely unacceptable. The United Nations believes the use of aversion therapy is torture and claims that it would not even be legal to use on convicted terrorists (Willingham). Autistic people receiving aversion therapy are being treated worse than terrorists; in what universe is that anywhere near acceptable?
I am fortunate in that the treatments I have received for my autism were not of the sort that caused any severe permanent damage. The abusive Applied Behavior Analysis and Systematic Desensitization therapies that I endured, while horrible, have not caused me any irreparable harm. Unfortunately, the same cannot be said for many of the other autistic people who have been forced into these torturous therapies. The answer as to whether a therapy is abusive or not can be summed up by asking the question: would this be considered abusive if it was done to a typically functioning person? Would it be acceptable to force a neurotypical child to drink a bleach mixture to solve their tantrums? Would it be acceptable to force a two-year-old child to perform the same monotonous tasks for forty hours a week regardless of their wishes? Would it be acceptable to perform shock treatments on someone for moving their hands? The answer is of course: no; this is not acceptable. It is time to do away with the notion that autistic people are broken and needing to be fixed. It is time to do away with therapies promoting a neurotypical standard. It is time to do away with these abusive and torturous treatments for autism.
The Judge Rotenberg Center (JRC), which treats people with severe mental illness and developmental disorders, is one of the only locations in the country where aversion therapy is still regularly performed. JRC states that aversion therapy is the only non-pharmaceutical cure for bad and destructive behaviors in autistic people. Glenda Crooks, JRC’s executive director, says that while the shocks are painful they do not cause any injuries; however, former employee Greg Miller argues against that, stating JRC patients regularly received severe burns from the treatment. Aversion devices today are now easily contained in a backpack like apparatus referred to as a Graduated Electronic Decelerator (GED). The GED device, which some people are forced to wear for up to 24 hours a day, is attached to electrodes placed against the person’s skin and controlled by a remote control carried by a doctor, nurse or staff member. Jennifer Msumba, an autistic woman, who received aversion therapy for things like head-banging and hand movements while at the Judge Rotenberg Center asserts that, "I felt like I was being punished for being born. Because I was disabled I was being punished” (qtd. in Werner). Msumba further stated, "It's so scary. I would ask God to make my heart stop because I didn't want to live when that was happening to me. I just wanted to die and make it stop." This sort of treatment is completely unacceptable. The United Nations believes the use of aversion therapy is torture and claims that it would not even be legal to use on convicted terrorists (Willingham). Autistic people receiving aversion therapy are being treated worse than terrorists; in what universe is that anywhere near acceptable?
I am fortunate in that the treatments I have received for my autism were not of the sort that caused any severe permanent damage. The abusive Applied Behavior Analysis and Systematic Desensitization therapies that I endured, while horrible, have not caused me any irreparable harm. Unfortunately, the same cannot be said for many of the other autistic people who have been forced into these torturous therapies. The answer as to whether a therapy is abusive or not can be summed up by asking the question: would this be considered abusive if it was done to a typically functioning person? Would it be acceptable to force a neurotypical child to drink a bleach mixture to solve their tantrums? Would it be acceptable to force a two-year-old child to perform the same monotonous tasks for forty hours a week regardless of their wishes? Would it be acceptable to perform shock treatments on someone for moving their hands? The answer is of course: no; this is not acceptable. It is time to do away with the notion that autistic people are broken and needing to be fixed. It is time to do away with therapies promoting a neurotypical standard. It is time to do away with these abusive and torturous treatments for autism.
Friday, April 8, 2016
Him
This poem tentatively titled Him (which I'm not set on by the way so if you can think of anything better) was written in response to some sort of challenge online. I don't remember the specifics, only that it had to be under 100 words and feature overtones of abuse, and I don't believe I submitted it nor the two other poems I wrote for this project, but here it is:
He snuck up
Behind me
And grabbed me
I wasn’t fast enough
I couldn’t get away
I fought back
But he was too strong
I bit him
I felt my teeth
Sink into his arm
And tasted his blood
As it filled my mouth
He let go
And I ran
And hid
I could hear him
Banging about
And cursing
In the other room
I pressed myself further
Into the tiny cupboard
I got away
...This time
Update on Voloyda
"I was reading through the blog and it really struck me how absolutely insane Voloyda's behavior was. You say several times you were thinking about going to the police but you never did. Why not? And how is he now? You haven't mentioned him since you broke up months ago." Markus made this comment on my last post and here is my response.
Voloyda and I have a long and confusing and oftentimes irrational relationship. As much as I bitched about him he was still my friend and I did love him. As weird as it sounds considering everything that was going on, I was trying to protect him, I didn't want to be the reason for him getting into trouble. And as bad as his behavior was I don't think he ever meant me any real harm and I was convinced there was something really wrong with him. I talked about how bizarre his behavior was but he wasn't always like that. We were together for three years, were engaged even, and things were great until they weren't. He changed and his behavior just got more and more erratic. He'd go through these horrible mood swings, he'd get super paranoid thinking there were people out to get him, he'd lose all sense of time, he spent all his money on stupid dangerous stuff, he did some pretty fucked up stuff to me personally. I kept telling him something was wrong, that he needed to go to a doctor, but he wouldn't listen. He kept insisting everything was fine that his behavior was perfectly normal. Eventually I couldn't take it anymore and broke up with him. On here he sounds like a complete psycho but that's not how he really is. As much as he annoyed me and stressed me out I still loved him, plus I felt bad about how our relationship ended.
He is so much better now. He's back to his old self. I mentioned it before, and again, I don't really want to go into the details too much because it's not my right to tell but I ended up being right; he was mentally ill. And now that he's getting help he's back to how he used to be. He's currently going part-time at university. He's moved back in with his parent's to help out with the farm and he has a part-time job. He's stopped hanging out with some of his more dangerous acquaintances. Since we broke up for good he's been totally cool. No late phone calls, no hiding in the bushes, no following me. We hang out as friends and are even LARPing together again. It's great. Everything worked out very well.
Saturday, April 2, 2016
24th Birthday/General Update
I know it's been a while since I updated (my finished essay about transgenderism was posted earlier) I've been busy with school, the anniversary of my father's death, my birthday, my disability hearing, Easter, and my cousin Ryker's birthday was today.
My birthday was the 16th. My parents were in Florida, as they were last year as well, so I went out with my grandmother and my aunt and her family. They gave me some money which went into my vacation fund. I went out to eat with my parents and sister after they came back. My mother got me a men's watch; it's batman themed. Plus she paid for my license tag. I'd picked out my own birthday card a while ago because she had a coupon at hallmark. It was blue with a dog and was addresses 'to my son.' She of course forgot it when they went on vacation and instead sent me a pink, flowery, glittery card addressed 'to my daughter.' It upset me greatly and when I brought it up to her after she got back she said she only chose it because of the message inside. I'm sure there was a son card with a similar message but whatever. She did give me the men's batman watch and the son card I'd picked out but I think it was only because I was near tears when I was talking about the daughter one.
School is going well, only four weeks left to the semester, I have one big paper due for comp2, which I'm already half finished with, and a bunch of math stuff, which I'm not really finished with. Currently getting A's in both the classed so let's hope I finish out the semester well. I'm registered for summer and fall classes. I'm taking sociology this summer, which I think will be interesting. For fall I've signed up for American multicultural lit and American history, so those should be fun.
My stepsister and her annoying family came down for Easter. It went about as well as it usually does, which is to say that I don't like annoying children in my house and I couldn't wait for them to leave. Everyone was there on Saturday including my sister's family, my aunt's family, and my grandmother. As is typical in that situation we ran out of chairs and I ate my dinner on the kitchen floor.
It is now April which of course means it is national poetry month. I will as usual be posting several of my poems, starting tomorrow, maybe, if I remember. April is also national autism month which I generally do not participate in due to the loathing I posess for Autism $peaks. Look at this site, http://www.boycottautismspeaks.com/, to find out more about why that is. I did do the 'light it up gold' thing last year which I didn't hear anything about this year but I did find out about the #REDinstead campaign. Last year it was called 'Walk in Red.' That site can be found here: http://walkinred.weebly.com/about.html.
Friday, March 4, 2016
Transgenderism: A Mental Condition or Normal Human Variance
I don't really have anything interesting going on so I figured I would post my essay that I'm working on. It's not totally done, I'm going to add some personal stuff (which I'll add into this one when I finish), but I think it's pretty good so far. Sorry for the weird formatting I copy and pasted it over.
UPDATE: Here is my finished essay. I did very well on it and got a 97%. Only one paper left to do this semester. I'm almost done with that one. I chose how harmful certain autism therapies are as my topic. It's coming along nicely.
UPDATE: Here is my finished essay. I did very well on it and got a 97%. Only one paper left to do this semester. I'm almost done with that one. I chose how harmful certain autism therapies are as my topic. It's coming along nicely.
Transgenderism:
A Mental Condition or Normal Human Variance
Transgender
is an umbrella term denoting people who identify themselves to be of a gender other than the one they were
assigned at birth. For instance, a
female identified person may feel like she was born in a wrong body because her feelings, behavior, clothing, body
characteristics, voice, and hairstyles
are those of a male. Most transgender people go through hormone replacement
therapy in which they are given either estrogen or testosterone in accordance
with their gender identity. Sometimes
transgender people go to the extent of
having surgeries to change their appearance and their sexual organs to align
with their gender identity. Transgender
people try to make their expression of gender
align with the gender they identify with internally. According to recent American polls, quite a
few people understand what to be a transgender person means. Many people
throughout the world overly discriminate and harass transgender people not
knowing that transgenderism is not a mental condition but rather a
normal human variant.
As a mentally ill transgender person
I know a fair bit about both. Along with
being a transgender male I also have depression, anxiety, and autism. To me, being transgender does not in any way
feel like a mental disorder. My mental
disabilities bleed into every aspect of my life, preventing me from going out,
from talking to people, from doing the things that normal people can do without
issue. Being transgender does not
negatively impact a person from within in the same way as a mental
illness. Rather it is society that
places undue hardships onto transgender people.
Most of my family does not acknowledge that I am transgender; every time
I bring it up they pointedly ignore it and change the subject. When I do push them about it, they insist
that I am a woman that I will never be a man.
This is hurtful and it’s not much better out of the house and amongst
strangers. I have had people call me
offensive names, I have had people move as if they were going to assault me,
and I have had people yell at me for trying to go into the bathroom. When out in public I fear for my safety. Transgender people have a one in twelve
chance of being murdered solely for being trans and the people who kill us get
away with it by claiming they were so shocked about us being trans that they
could not help it. This is
unacceptable. Transgenderism is not a
mental illness; we are not sick, or crazy, or dangerous, we are just people
trying to get by the same as everyone else.
Several questions have been raised
as to whether being a transgender person is a mental disorder. The American Psychological Association
recently argued that being a transgender person is not a mental illness. The association made these changes to its manual
known as DSM-5 and instead focused on the people who are usually distressed by
their gender identity (Basu). This idea
is re-emphasized by Dr. Johanna Olson in an interview with ABC News. He says that doctors, therapists and
psychiatrists who have treated transgender people do not align it as a mental disorder.
They believe that it is a normal
variation of gender identity that causes
little distress to a person who does not know how to deal with the world
anymore (Burke).
Many experiences such as
discrimination, assault and being outcasted
are the ones that cause the transgender population to suffer from depression,
anxiety, suicidal thoughts or actions and other common mental health disorders. At a rate of ten times the national average
an estimated 41% of transgender people will attempt suicide at some point in
their life.
Because mental illness
as well as gender non-conformity is still
stigmatized in our society, many transgender individuals suffering with
depression are in the unfortunate position of having to contend with two
stigmas, which in turn can exacerbate their mental health problems.
When a people who identifies as trans has internalized society's negative
view of them, it is often the case that they do not seek out the treatment
they need (Scutti).
stigmatized in our society, many transgender individuals suffering with
depression are in the unfortunate position of having to contend with two
stigmas, which in turn can exacerbate their mental health problems.
When a people who identifies as trans has internalized society's negative
view of them, it is often the case that they do not seek out the treatment
they need (Scutti).
The
APA argued that according to the analytical and statistical guide of mental disorders, those who go through complex gender
incongruence are normally given the diagnosis of gender dysphoria. Ariel Williams,
who is a writer-artist and also a
transgender person, concurs with this argument, saying that some people explain
the diagnosis inappropriately as pathologies gender non-congruence and that it should be
removed. He goes ahead to say
that they are convinced that it is an
essential to hold on the diagnosis to
ensure easy accessibility to care. He
identifies the international classification of diseases (ICD) in undergoing revision, and changes might occur
to the current classification of stubborn,
persistent incongruence. (Steinmetz)
During the 1990s, the transgender population
faced social stigma from society and were placed in the same category as
pedophiles. Williams explains the reason as to why people call transgender
people mentally ill is because before a person
can receive hormone replacement therapy or get surgery, they must receive
at least two years of treatment from a psychologist or therapist to prove that they are not mentally ill. This means that before conducting a surgery the doctor must
assure them that they are not suffering from delusions that could be causing
the difference in their gender identity.
Williams thinks that these issues are the ones that contribute to the
society’s wrong thinking about the transgender. He further believes that it could be very easy
if people took the matter as easier to understand. Dr. Dana Beyer, LGBT civil rights describe a
similar situation, restating that the new development outlines a clear
understanding of transgender people and will help bring an end to the
stigmatization and discrimination with the rest of the community (Basu).
It is not known why transgenderism
occurs. According to the American
Psychological Association, transgender people do not choose to be born
transgender but rather face a situation where their gender identity is not the
same as their birth sex. An article by Time
magazine outlines that a lot should be done
about the transgender rights. If nothing
is done, our cultures may as well
disappear into discrimination and segregation. The transgender population should be given the right to do whatever they want, including
using the restrooms of what they feel they are, male or female. For them having a comfortable and safe place
to go to and people to talk to, transgender people could feel at home and not
feel like strangers when around people. The
Center for American Progress also shares similar views, arguing that a time had
come to embrace change and treat everyone equally, regardless of their gender
or sexual orientation. In a recent
article, the issue was revisited by the Center for American Progress:
State and local
governments should put into place policies and practices
that treat all workers the same, regardless of sexual orientation or gender
identity. These policies are good for gay and transgender workers. They are
good for efficient and effective government. And they are good for the
American taxpayer. The time to act is now. (Burns, Graham and
Menefee-Libey 37)
that treat all workers the same, regardless of sexual orientation or gender
identity. These policies are good for gay and transgender workers. They are
good for efficient and effective government. And they are good for the
American taxpayer. The time to act is now. (Burns, Graham and
Menefee-Libey 37)
However,
as of today, the debate still continues, and not all scholars and psychiatrists
believe that being transgender is not a mental condition. Dr. Paul R. McHugh, who is the current
Distinguished Service Professor of Psychiatry at John Hopkins Hospital, differs
sharply with the APA, arguing that indeed transgenderism qualifies as a mental
disorder. He continues to explain that
the condition should be treated rather than pursuing alternatives such as sex
change, which according to him is biologically impossible. McHugh emphasizes that the idea of promoting
surgeries aimed at sexual reassignment among transgender people only results in
more harm and promotes a mental disorder. Jim Goad, author and publisher, makes a
similar point, arguing that undergoing surgery to change a person’s sex is not
the solution for transgender people. He
continues to explain that transgender people suffer a disorder of “assumption”
and that this is similar to other mental disorders (“If We Can Be”).
Society
should learn to accept the transgender population as people. Reading of books so as to understand them much
better can help to change people’s views. Language also matters most to the transgender
population. Certain phrases and words should be
avoided when talking to transgender people so as to not say something
offensive or transphobic. The entire
community should embrace the transgender community
so as to move forward in building our nation's
awareness. Therefore, transgender people deserve equality, and they should not
be discriminated or harassed because of their gender identity but rather the
society should accept that every person is different in their unique way.
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